The Power of Kindness

Yesterday morning, I posted this on Facebook:

"It was 20 years ago today, Sgt Pepper taught the band to play...
and in a few short moments on a highway in Philadelphia, I traveled from social worker to client.
It's been a VERY long time since the anniversary of my brain injury has bothered me, but I have to admit this one is. I need to actively remind myself that recovery is a life long process filled with 3 steps forward and 2.99 steps back, that while I routinely remind others to have realistic expectations for their recovery, I need to have more realistic expectations for my own and that even on the days my brain is most fatigued and I'm frustrated because I'm at my least functional, I am still a gazillion times more able than I was in the first year after the accident.
So today I will allow myself to feel badly for a bit and then I will take control of my anniversary and do something I wasn't capable of doing 20 years ago today."

My post was a way to remind myself it's ok to be sad AND (one of my very favorite words) that I was fluent in the strategies I needed to face the day. It felt sort of like someone publicly declaring they are giving up smoking or starting an exercise program; when you say it out loud you feel more committed.

And then, I went about my day.

First up, a Doctor's appt. I did a whole lot of seeing Doctors 20 years ago, so to differentiate those Doctor appointments from this Doctor's appointment, to remind myself of how far I've come, Rango and I walked up the 6 flights of stairs to his office. A far cry from the days of someone helping me into a wheelchair and then wheeling me to the bathroom. I was a bit winded by the time I got to the Sixth floor, but was beginning to feel strong.

Next it was on to my Mom's memory care assisted living facility. After a visit with her, during which I'm fairly certain she was more delighted to see Rango than she was to see me (and can you blame her), I met with a Palliative Care Nurse to develop a Care Plan. Now 20 years ago, I spent hours and hours talking about and thinking about Care Plans, but surreal as it seemed to me at the time, it was no longer my client's Care Plans I was discussing, it was my own. (My empathy for my former clients grew 10 fold during those Team Meetings, as I realized how bizarre it feels to be sitting in a room full of health care and rehab. professionals and YOU are the topic.)

But now 20 years later, I was paying it forward. Unlike that first year(s) after my injury, I was capable of fully participating in ensuring my Mom gets the supportive services she needs and able to think creatively to problem solve strategies to deal with the obstacles that arise. Those first years after my injury when I was adjusting to the reality that in all liklihood I would never have the cognitive stamina to be competitively employed, in many ways I felt lost. Being a Social Worker wasn't just my what I did for a living, it was who I was as a person. Today's meeting to design a Care Plan for my Mom was a concrete reminder that regardless of whether or not I have a paying job as a Social Worker, I am able and I am committed to strive to make a difference in this world.

By then, my exhausted brain needed a rest so it was on to mindless television until I had recovered enough to listen to my Survivors Playlist:

Reba McEntire's I'm Gonna Take That Mountain:
"I was born a stubborn soul.
Ain't afraid of the great unknown
Or a winding road that's all uphill...
I'm gonna take that mountain. "

Reba's I'm a Survivor:
"And though my life is changing fast,
Who I am is who I want to be...
A victim of circumstance.
The one who oughta give up,
but she's just too hard headed.
I'm a survivor.

Patty Griffin's I'm Making Pies:
"You could cry or die or just make pies all day.
I'm making pies."

Patty's I Don't Ever Give Up:
"But I don't give up, no, I don't ever give up
It's all I've got, it's my claim to fame."

Bruce Springsteen's The Rising:
"Lost track of how far I've gone
How far I've gone, how high I've climbed...
Come on up for the rising..."

And of course, the grand finale, the song I listen to right before every speech or presentation I give, the song that I play in my head when I feel a challenge may too big for me to face.

Sing along now:

"Oh yes, I am wise
But it's wisdom born of pain.
Yes, I've paid a price
But look how much I've gained
If I have to, I can face anything.
I am strong.
I am invincible.
I am woman. "

By the time I listened to the latter, I was in an Uber car headed back to my Mom's to see our favorite quirky music man, who comes to Arden Courts each month to entertain and lead a sing a long. I was in the back seat, head phones on, pumping my fist to the chorus: "I am strong..." As has happened on more than one occassion, I'm fairly certain Rango rolled his eyes at me and the Uber driver stole glances at me in the rear view mirror, slightly amused and perhaps a tad alarmed.

As my Mom and I sang along to songs she still knows by heart (and now unfortunatly not only do I know Ballin the Jack by heart, it's the ear worm stuck in my head,) I reveled in life truths that became so crystal clear to me over these past 20 years - the importance of simple pleasures, the value in striving for pleasant moments and the joy in human connection.

Those of you who know me well and know the limits of my cognitive stamina, can see in the description of my anniversary day's activities, that 20 years later I continue to struggle with living within the limits of my injured brain's very limited energy supply. I continue to be a work in progress.

As I rode home in an Uber car yesterday evening, I thought about my day and was pleased with how I'd done. I had allowed myself to be sad; I had been prepared for that possibility. I have to admit, I was taken by surprise by the flashbacks of the accident itself. (Before my mental health pro friends become alarmed, they weren't true flashbacks. I knew I wasn't actually back on that Highway. Clinically they were intrusive memories.) But I was able to note them and move on with my day, being intentionally mindful of all that I could do that would have been impossible 20 years ago, including using Uber by myself. I took time to remind myself of how amazing it was to be able to go places alone when for so long it wasn't truly safe for me to be in my own home alone. That is until there was Stone. With him I was never alone.

And then I opened Facebook.

When I posted my committment to myself this morning, my vow to allow today to have a balance of grief and positivity, I expected a few hang in theres, a prayer or two, perhaps a few posted hearts and maybe an I love you. What I found instead was an outpouring of love and support and community. I sat speechless, reading, tears rolling down my cheeks and felt my heart grow three sizes bigger. I felt physically lighter as if this community of friends and family were holding me up off the ground, holding some of my burden. I was reminded of the power of kindness and felt so incredibly blessed to be surrounded by such loving, giving, kind souls. I want each and every person who left me a Comment, who clicked "Like" on my Post, who left me a voice mail or sent me an email or text to know that you made a difference in the world, you made a difference to me. Your kindness mattered.

I am a true believer that like a pebble in a pond, each kind gesture has a ripple effect on the world we live in. Yesterday my Facebook family caused a tiddle wave of love and I am moved and humbled and emnormously grateful.

So today I am adding a song to my Survivor's playlist, inspired by the loving reminder from my family and friends that I am not alone on this journey, that there is a community of amazing people who are able and willing to lift me up when gravity seems too heavy to stand alone.

Christina Aguilera's Lift Me Up:
"If you life me up
Just get me through this night
I know I'll rest tomorrow
And I'll be strong enough to fight"

As a Matter of Fact it is a Laughing Matter

Recently I got an email from a dear old-new friend. In it, she told me about all the life challenges she’s currently facing. It was a long list of serious problems, so long in fact, it would have been more than understandable if most days, she stayed in bed with the covers pulled over her head.

But she doesn’t. Instead, she gets up every day and goes to work in a human service organization where she strives to improve the quality of people’s lives. Her email was honest and painful and poignant and funny. She commented on the latter noting “Well at least I still have my sense of humor.”

I would venture to say that her gift for laughter plays an important role in her ability to get up every day and make the world a better place. This realization confirmed what I had already felt . My friend and I resonate on the same frequency.

Those of you who know me, know that laughter is a key component of my strategy for dealing with the too often unavoidable painful realities in life. In a motivational speech I give entitled “Building a Life You Like Even When It’s Not the One You Wanted”, I talk about the importance of humor.

If you’ve ever taken Psychology 101 you may remember that there are a number of Schools Of Thought within psychology, Psychoanalytical, Behavioral and Cognitive, to name a few. Each provides a framework through which we are suppose to see our world, our fellow humans and ourselves.

In the past 15 post brain injury years, I’ve developed my own School of Thought. I’ve kept it simple; I do have a brain injury ya know. :) I call mine the Bumper Sticker Approach to Life. One of the cornerstones of my framework, one of my favorite bumper stickers is Find the Funny.

Finding the humorous anicdote in life's most embarrasing moments can completely eliminate their ability to shame us.

I have to confess that when it comes to this particular principle of my philosophy, I have a distinct tactical advantage. First, I come from a long line of Irish story tellers who have refined sarcasm to an art form, so I have both nature and nurture on my side. Plus, when you have a brain injury and when everywhere you go you bring a large dog, (and I do mean everywhere), if you are looking the “right” way, funny stuff happens to you all the time.

For example, there was the time at the grocery when an older woman in a very, very short skirt was choosing apples to buy. As Stone and I walked past, she leaned in, reaching for the apples in the back of the bin and my sweet, innocent, brilliant, well trained, impeccably behaved service dog stuck his snoot right up her skirt

She was not amused. Clearly, the rest of us sure were.

Public restrooms are a routine source of laughter for me. There’s nothing quite like the reaction of a woman who’s using the restroom when a large dog snoot suddenly appears poking in from the stall next to hers. Heck, he’s just trying to be friendly.

The deficits form my brain injury are often a great source of amusement for me. Frequently, I have “word finding” problems. Sometimes I draw a blank and stumble and stutter ‘till the word I’m seeking finally comes to mind. But sometimes, while I’m talking, without my even realizing my brain couldn’t come up with the word I intended to say, the completely wrong word comes out of my mouth. Often, I don’t notice I’ve said the wrong word, no matter how non-sensical my sentence has become because of it.

This vocabulary mix-up is a very common symptom for people with brain injuries. When it happens to me, most of the time, the word that comes out of my mouth sounds similar to the word I meant to say, even when their meanings aren’t remotely the same. So, for example, if I meant to say “hat” I might instead say “bat”, then I’d just go right on talking without noticing my mistake. As you might imagine, this deficit can lead to some pretty entertaining conversations.

There was the time a few years ago when I was talking with a small group of acquaintances about the advice an Arborist had given us to ensure our old growth trees survived the summer of draught. It’s important to note here that these were only acquaintances, not friends. By now, many of my friends are quite used to helping me find the funny in my vocabulary mistakes. I was talking for probably several minutes about what the tree specialist had told us, when it occurred to me that no one else was participating in the conversation. I looked around and saw that every single one of them stood in stunned silence looking at me, jaws hanging open. One woman had gone quite pale. A brave gentleman cleared his throat uncomfortably and then asked “You had an abortionist come to your house to look at your trees?”

OOPS!

Reading is often another source of amusement at my house. Since my injury, when I’m reading, my eyes and brain are often out of synch. My eyes move faster than my brain can read. To compensate, my brain will often read the first part of a word and in it’s struggle to keep pace with my eyes, it then makes an educated guess about what the rest of the word is. Basically, without my even being aware, my brain simply makes stuff up. Typically, when I get to the end of the paragraph I realize something does not compute. As I write this, I’m suddenly seeing visions of Lucy and Ethel trying to keep pace with the assembly line conveyer belt at the candy factory. In either case, laughter ensues.

Just last week I was reading an email from a Rehabilitation on-line discussion group/ list-serve to which I subscribe. Rehab. Psychologists use the group to seek advice and share resources and expertise. A group member sent an email requesting recommendations for treatment strategies when working with a client with Capgras Syndrome, a serious and rare disorder in which an individual believes his spouse has been replaced by an identical imposter. I read the opening sentence of the email and this time it took me only seconds to realize something definitely did not compute. I stopped mid sentence and asked myself out loud “When on earth did Crap-Gas become a psychiatric disorder?”

When I realized my mistake I have to admit I wished there were a 12 year old boy in the house who would fully appreciate the humor.

But, my all time favorite opportunity to find the funny, occurred a few years ago at a health club. I was recovering from a stress fracture in my leg. (It turns out if your brain doesn’t have complete control over one of your legs, jogging isn’t a good idea. Who knew?) I decided swimming would be great exercise while I was recuperating. Since my brain injury, I hadn’t been in a pool except with a Physical Therapist and I hadn’t even done that since the first two years after my accident. Even with a Therapist by my side, the experience was… well… let’s just say challenging.

As Stone and I rode the bus to the health club, I began to get nervous, wondering if perhaps this time my eyes really were too big for my stomach, figuratively speaking of course. I assured myself I would be fine, after all the pool had a lifeguard. The battle between my nervous self and my I can do this self lasted the entire ride. In the end, the knowledge a lifeguard would be there if I had a problem, convinced me to ignore my nervous inner voice who wanted to delay my swimming debut until someone could go with me to the pool.

Naturally, when I got to the pool the first thing I looked for was the lifeguard. He was there all right, but not only did he look as if he were nearly 70 years old, he was asleep. I was, shall we say, somewhat discombobulated.

I was so stunned in fact, I didn’t notice the sign outside the locker room door I entered. I wish I had, because it said “Men’s ”. (Yes, as a matter of fact, the word “Oops” is a regular part of my daily life.) I walked in past the unnoticed sign, turned the corner and right in front of my eyes was an 82 year old gentleman sitting naked in the hot tub. We were both surprised.

I mumbled a hurried apology and quickly made my escape. Can you imagine the conversation that poor man had when he got home? “You’re telling me a woman and a dog walked in on you when you were naked in the locker room. Henry, you promised you’d stop drinking during the day.”

Yes, my life is rich with opportunities to find the funny, happily so.

And so, my dear friend who’s email inspired this entry, my wish for you is that you continue to laugh when you can and cry when you have to. Please know, I will be right here handing you virtual Kleenex whether your tears are from laughter or pain.